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Motor Neurone Disease (MND) is a progressive disorder of the nervous system. Its effects on the body are so severe that it eventually changes the lives of those affected and hence those of their families, friends and work colleagues.
Motor Neurone Disease: Answers at your Fingertips is packed full of sensible advice. The expert authors address the physical and emotional upheaval that MND brings on, discussing its impact on the person with MND and on whole family, offering positive help and advice. The book provides up-to-date and medically accurate information on a whole range of topics. These include diagnosis and treatment and issues arising from adapting to life with MND, such as mobility, feelings and sexual relationships.
- Advice on finding the right care and treatment throughout the progression of the disease
- Answers to over 150 questions asked by people with MND and their families
- Details of organizations, self-help groups, helplines and websites for information, advice and useful aids
- Practical information about employment, benefits, how to adapt the home and care services available
Table of Contents
- My partner has just been diagnosed with MND. What are the usual stages of MND and how fast does it progress?
- I have been given an appointment for tests on my muscles. What will this involve?
- My sister has been told that she has MND, but has not been prescribed anything. Are there no drugs for treating MND?
- My doctor has offered me physiotherapy sessions. Should I take these up?
- Somebody at the local branch said yoga was very helpful for their MND, but I wonder how it would actually help?
- I frequently feel very short of breath. Is there anything that can be done to help me take deeper breaths?
- I have developed palsy and get really mad when sometimes people think that I am drunk when they hear the way I speak. Is there a polite way of putting them straight?
- Are there any new models of speaking typewriter?
- I have MND and am mobile and reasonably fit considering. Is it safe for me to continue regular exercise?
- Can you make any general recommendations about self-powered wheelchairs or electric cars?
- How can I get my wife into and (more to the point) out of the bath? I used to be very fit, but I am over 70 now and I'm afraid of injuring her or myself if she slips.
- My husband has great difficulty handling our usual cutlery. How can I make eating easier for him?
- What is involved in a needs assessment?
- I have been diagnosed with MND recently. Do I have to tell my employer and my colleagues once I have been diagnosed with MND?
- What benefits do you think I could be eligible for?
- While I am still able, I want to choose how I will be cared for later on. If I write down my wishes and sign them, will they have any legal force?
- How can I tell my children that I have MND and that I am not going to get better?
- Do you think there will ever be a cure for MND?
Part 1 MND explained
Part 2 The possible causes of MND
Part 3 Diagnosis and prognosis of MND
Part 4 Medical Treatments for MND
Part 5 Surgery for MND
Part 6 Complementary therapy and self-help for MND
Part 7 Problems with swallowing and breathing
Part 8 Problems with communication
Part 9 Problems with bladder and bowel function
Part 10 Adapting to life with MND
Part 11 Care and services
Part 12 Employment issues
Part 13 Financial and legal issues
Part 14 Coping with MND
Part 15 Future research into cures and causes
'This book will be a very useful tool for anyone affected by MND'Heidi Macleod, Motor Neurone Disease Association
'I very much enjoyed reading this book and think it will be well accepted among the many families trying to find information on motor neurone disease.'
Sandra Wilson, Information Officer, Scottish Motor Neurone Disease Association
'…an excellent introductory guide for people newly diagnosed or who suspect they have MND'Jan Chamier, London For further information please contact the Motor Neurone Disease Association -www.mndassociation.org
About the Authors
Dr Stuart Neilson BSc, PhD is a lecturer in the Department of Epidemiology, University College, Cork, Eire and former director of Medical Information Systems at CSHSD, Brunel University, Middlesex.
Dr Frank Clifford Rose FRCP, is a Consultant Neurologist and the Director of the London Neurological Centre, Harley Street. He is a former Medical Patron of the Motor Neurone Disease Association.